Quality of Life in Families and Communities


Links to External Training Resources

To nominate a link to be listed here,
contact: Judith McKenzie

Parents with IDD

Resources for Parents with Learning (Intellectual) Disabilities

This very comprehensive list of resources, on the site of the School for Policy Studies, University of Bristol, UK, provides helpful and practical resources for understanding parents with disabilities and best practices of support.

Healthy Start: Helping Professionals Support Parents with Learning (Intellectual) Disabilities

The Parenting Research Centre in Australia provides several useful links for professionals supporting parents with intellectual disabilities.

The Intersection of Child Welfare and Disability: Focus on Parents 

This professional magazine is from 2013, so it is a bit dated, but it provides some sound information. Center for Advanced Studies in Child Welfare, School of Social Work, University of Minnesota. Some further resources on their webpage: https://cascw.umn.edu/portfolio_tags/parental-disability/

IASSIDD-Generated Training Resources

To nominate a link to be listed here
contact: Michael Arthur-Kelly

Parents with IDD

Resource 1



List of resources and links for PIMD

This is a link to resources that have been used in workshops on profound intellectual and multiple disability

Individual Quality of Life


The website is about training, research and counseling activities  on  disability to  improve their quality of life and selfdetermination. The website is in Spanish and has many useful and free resources. 

EQUALITY Research Collective

The website is in Dutch and is focused on promoting quality of life and guaranteeing human rights of people who are in vulnerable situations.

Individual Quality of Life

Family Quality of Life

The site is a resource on family quality of life, a conceptualization that consists in five domains: (1) family interaction  (2) parenting  (3) emotional well-being (4) physical/material well being and (5) supports for family member with a disability.

The International Family Quality of Life Project

Resources on the quality of life of families who have one or more members with an intellectual or developmental disability. The project was initiated in 2000 by researchers from Australia, Canada, and Israel. Instrument is available in several languages.

Webinar: Quality of life and family quality of life: Learnings from research, and two new ways of looking at quality of life

September 10, 2020

Presentation by Ivan Brown to: Continuing Professional Development, Department of Psychiatry, Western University, London, Ontario, Canada, September 10, 2020

Co-hosted by: IASSIDD Academy and the Quality of Life Special Interest Research Group

Family Quality of Life

Quality of Life Concepts

Quality of Life Concepts

International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 

The International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) is the first and only world-wide group dedicated to the scientific study of intellectual disability.

Founded in 1964 as the International Association for the Scientific Study of Mental Deficiency, IASSIDD is an international, interdisciplinary and scientific non-governmental organization which promotes worldwide research and exchange of information on intellectual disabilities.


Please contact the IASSIDD international office for questions about joining IASSIDD, renewing your membership or general questions.
© 2018 International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD)