The Special Interest Research Group on Parents and Parenting with Intellectual Disabilities (SIRG/PID) was founded in 1996 at an international conference in Denmark which was organized by the Danish Ministry of Social Affairs and The EU Commission. The SIRG/PID was formally affiliated with IASSIDD in 2002.The mission of the Special Interest Research Group on Parents and Parenting with Intellectual Disabilities is:
- To create opportunities for international and multidisciplinary networking between individuals and organisations with an interest in the topic of parents and parenting with intellectual disabilities.
- To foster research and innovation that will advance knowledge and understanding of social
barriers and effective supports for persons with intellectual disabilities in the parenting role.
- To expose social and systemic discrimination against—and promote equalisation of opportunity for—parents with intellectual disabilities and their children, around the globe.
- To facilitate the translation of knowledge from research into policies and practices that support persons with intellectual disabilities in the parenting role and enhance their children’s life chances
The executive of the Parenting SIRG sets objectives at the time of every IASSIDD World congress and follows them every 4 months. To learn more about our ongoing objectives, please see the links below.
SIRG/PID activities are guided by the following aspirational principles:
- All SIRG/PID members can participate freely and equally in any discourse related to the mission of the SIRG/PID
- The active participation of parents with intellectual disabilities in any SIRG/PID discourse about their lives, support needs and so on is not only valued, it is sought-after.
- Research and experience—including but not limited to the experience of practitioners, parents and family members—are valued as potentially rich sources of knowledge and understanding.
- The distinctive contributions to knowledge made by analytical (quantitative), interpretive (qualitative) and critical (emancipatory) research traditions are recognised and respected.
Document and Publications
Download the 4th IASSIDD Europe Congress Conference Presentations
Download the 2010 Annual Report
For copies of past reports and the minutes of previous SIRG/PID meetings please email the SIRG/PID Chair; email@example.com.
1. Our last Position Paper was published in 2008. It was suggested that we explore the possibilities to write a new position paper that would include our latest research. We are discussing if this Position Paper should have a particular focus such as Child Welfare or Family or Law. PLEASE, let us know what you think!
2. IASSIDD Special Interest research Group on Parents and parenting with Intellectual Disabilities (2008). Parent labelled with intellectual disability: Position of the IASSIDD SIRG on parents and parenting with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 21 (4), 296-307.
Download the 2008 Position Paper
For summaries of virtually all articles published on the topic of parents and parenting with intellectual disabilities, and for research-informed· ‘practice-points’ go to www.healthystart.net.au
The IASSIDD World Congress will be held in Glasgow, UK, August 6-9, 2019.
The Parenting SIRG is in the process of organising an academy workshop and professional day. Please stay tuned for more details in regards to content.
The IASSIDD Asia-Pacific conference was held in Bangkok, Thailand, November 13-16, 2017.
The 2014 IASSIDD Europe Regional Congress was held in Vienna, Austria, July 14-17, 2014.
In November all paid members of the Parenting SIRG will be contacted in order to nominate and elect a new SIRG executive that would enter in function at the Glasgow congress. More details to come.
Elections are now held every three years to appoint the SIRG/PID executive committee. Active members nominate and vote for members before every International IASSIDD Congress. The Chair represents the Parenting SIRG on IASSIDD Council.
Chair: Marjorie Aunos, PhD, Scientist-Practitioner firstname.lastname@example.org
Past Chair: David McConnell. email@example.com
Members for the Americas
- David McConnell, PhD
Professor and Director, Family and Disability Studies Initiative, University of Alberta, Canada
- Traci LaLiberte, Ph.D.
Executive Director, Center for Advanced Studies in Child Welfare, University of Minnesota, USA
Members for Europe
Members for Asia and the Pacific
- Susan Collings, PhD
Dr Susan Collings, Research Fellow, Institute of Open Adoption Studies, The University of Sydney, Australia
- Margaret Spencer, PhD
Lecturer (Social Work), Sydney School of Education and Social Work, Faculty of Arts and Social Sciences, The University of Sydney, Australia
- Iva Strnadová, PhD
Associate Professor, School of Education, UNSW Sydney, Australia
Members for Africa and the Middle East
- There is currently no representation for Africa and the Middle East. Expressions of interest are welcome.
Marjorie Aunos, PhD