The SIRG has as its founding principles:
- Provide a forum for the worldwide exchange and dissemination of research and practice, as well as networking in the field of persons with profound intellectual and multiple disabilities. Individuals with profound intellectual and multiple disabilities form a heterogeneous group. They are characterized by very severe cognitive, neuromotor and or sensory disabilities, which lead to very intensive support needs. The SIRG-PIMD brings together researchers and practitioners with different disciplines and from different countries.
- Promote cross-national, multidisciplinary collaboration in the area of persons with profound intellectual and multiple disabilities. The ultimate aim of the group is to improve the quality of life and services for people with profound intellectual and multiple disabilities, their carers, and their families.
- Provide a framework for the dissemination of information relating to the research interests, expertise, and publications of group members. Within the overall process of collaboration, the views and contributions of nonprofessionals, including people with intellectual disabilities and their families and friends, are a fundamental component, and will be given the priority they deserve.
The SIRG works by means of a newsletter, website, and roundtable conferences. The group also makes several contributions on the European, Asia-Pacific and World Congresses of IASSIDD. There is a dynamic early career researchers group.
Chair: Bea Maes
Secretary: Juliet Goldbart
Treasurer: Bea Maes
Council Representative: Juliet Goldbart
Board members: Bea Maes, Juliet Goldbart, Annette Van der Putten, Nan-Chieh Chen, Gare Fabila, Krysti De Zonia, Kathleen Tait
Communication: Sara Nijs & Leentje Van Alphen (newsletter)
Social media: Jorien Luijkx
JPIDD associate editor: Annette Van der Putten
Track Chair Glasgow: Annette Van der Putten
Website: Bea Maes
Early Career Researchers: Sien Vandesande & Marleen Wessels
Documents and Publications
- Newsletter January 2019
- Newsletter May 2018
- Newsletter December 2017
- Newsletter June 2017
- Newsletter December 2016
- Newsletter June 2016
- Newsletter December 2015
Reports of activities
Presentations from Roundtable Fribourg 2017: Dind.pdf; ECPprovisoire.pdf; Goldbart.pdf; Nijs.pdf; Onodera.pdf; scelles.pdf; SienVandesande.pdf; Ware.pdf; Presentation Roundtable Fribourg VM.pdf; Gremion.pdfPPT Ines van Keer.pdf
Presentations from Melbourne conference 2016: Abstracts IASSIDD PIMD author and title.pdf; Buell_PosterEasyRead_IASSIDD.pdf; Emerson_LessonStudy_IASSIDD.pdf; Forster_Video_IASSIDDpart.pdf; Heslop_PrematureDeaths_IASSIDD.pdf; Lee_IntensiveInteraction_IASSID.pdf: OJKO_IASSIDD.pdf; Poppes_Behaviour_IASSIDD.pdf; Prain_VIG_IASSIDD.pdf; Steendam_Visual_IASSIDD.pdf; Urbanowicz_RettChoice_IASSIDD.pdf; Urbanowicz_RettGaze_IASSIDD.pdf; vanAlphen_activity_IASSIDD.pdf; Warren_Communication_IASSIDD.pdf; Watson_Article12SPID_IASSIDD.pdf; Wehmeyer_Decision_IASSIDD.pdf; WIllis_Mammography_IASSIDD.pdf
- The next IASSIDD World Conference will be organised in Glasgow, from 6th – 9th August 2019.
- A lot of SIRG-members will present their research at the next IASSIDD World Conference in Glasgow, from 6th – 9th August 2019. The early career researchers’ meeting will be held before the conference, on the 5th of August in Glasgow.
- SIRG-members are asked to organize a conference in Plovdiv for East-European researchers and service providers for persons with PIMD. See HERE for the program.
- Bea Maes, Belgium: Chair
- Juliet Goldbart, UK: Secretary and IASSIDD-council representative
- Annette Van der Putten: The Netherlands
- Nan-Chieh Chen, Taiwan
- Krysti De Zonia, US
- Gare Fabila, Mexico
For information on joining the SIRG-PIMD, contact the SIRG Chair,
Bea Maes at [email protected]
or write to
Research Centre on Special Education and Parenting
University of Leuven
Leopold Vanderkelenstraat 32, B-3000 Leuven